The Charity has always focused its efforts on raising funds to increase research towards the treatment and cure of Chronic Granulomatous Disorder and support the families affected. Your donations, help and feedback have been vital and will continue to be.
We've come a long way since we began in 1991 with just five member families. We now have over 180 families in the UK and overseas, and have raised almost £3m through a fantastic team effort by donors, fundraisers, patrons, trustees, trust staff, members and friends.
One of our best known successes is the Jean for Genes campaign and brand, having been the founder partner and architect of the association. Jean for Genes is nowadays our largest single source of funds, enabling us to allocate grants for research every year and to employ a full time CGD specialist nurse.
One of our first major grants came in 1997, £142,000 from the National Lottery Charities Board to fund a project at the Institute of Child Health. Successfully completed, this work contributed to progression towards clinical trials.
Our full range of information products can be downloaded from this website including the key booklet ‘Chronic Granulomatous Disorder: A Guide for Patients and Their Families’ and information sheets on everything from diet to holidays. To order copies by post, please phone +44 (0) 1725 517977 or email Rosemarie Rymer at: cgd@cgdrt.co.uk.
The trustees are actively encouraging the dissemination of knowledge among medical professionals. We hold conferences for medical professionals and for researchers and are continually upgrading the information useful to doctors and nurses on this site.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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