The Chronic Granulomatous Disorder (CGD) Research Trust is a UK registered Charity, No. 1003425. We are the founder member of Jeans for Genes. We belong to the Association of Medical Research Charities (AMRC) and the Genetic Interest Group. We are an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI). We have close links with The Primary Immunodeficiency Association (PiA) and our other Jeans for Genes partners.
Our Chief Executive works alongside three Patrons, ten Trustees, five regular Staff, a full-time Specialist CGD Nurse and a range of freelance contractors and voluntary helpers to deliver the services of the Trust. We maintain strong relationships with a wide range of organisations and individuals working in health and research.
Director
Liz Nelson
Patrons
Mr Robin Nott, Mrs Jo Salter, Mrs Alberta McLeod-Stringham
Trustees
Peter Brown, Chairman
Janet Fullerton, Vice-chairman
David Barlow
Michael Berry
Simon Capell
Geoff Creamer
Richard Hope
Rory Murray
Andrew Orchard
Caroline Towers
Staff
Director: Liz Nelson
General Manager: Rosemarie Rymer
Medical Research Officer: Dr Susan Walsh
Administrator: Averil Cubitt
Marion Barlow: Book keeper
Others
Website editor and project manager: James Robertson
Key volunteer: Barbara Akakpo
We would like to thank Morrison and Foerster, the international law firm, for their invaluable advice and help. We are also grateful to all of our other professional advisors and volunteers who have given their help and time so generously.
CGD Research Trust Membership
At the centre of our membership are the individuals and families affected
by CGD. The charity’s work is led by the needs of this core group.
We welcome suggestions from our other groups, including medical professionals
and our supporters. Contact us.
Membership is free, please Contact us for more details.
Have you got some good ideas for our website? If so, Contact us.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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