No two people with CGD have exactly the same needs, and at different times the same person needs different services. For example, emotional support or a good listener may be most valuable at one point, when at another point they may be looking for the sort of information on practicalities that we provide in our fact sheets. While we do not provide advice as such, we can help you access advice from medical sources and give examples of how other people have coped. Many of our services are at no cost, or low cost to users.
Our care services for members resident in the UK include
- Medical advice and care from a specialist CGD nurse
- Help from a clinical psychologist (A service we hope to offer shortly)
- Emotional support and listening on the telephone
- Crisis support and preparation for major life events
- Information, via telephone, newsletter and website including latest research findings
- Introductions to others who can help, including CGD families
- Organisation of social and educational events
- Lobbying on behalf of the CGD community
- Raising awareness of CGD through the media and other channels.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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