The following downloads are provided free of charge. More topics will be available soon. They are in PDF format which means you may need the free Adobe Reader software in order to view/print them downloaded from here.
To download a pdf file, please click the relevant title below:
Fact Sheet 1 – About your medicines
Children and adults
with CGD take medications every day to help prevent bacterial and fungal infection.
This fact sheet aims to tell you a little more about the two medicines that
most people with CGD take.
A4,
5 pages, published December 2003.
Fact Sheet 2 – Dealing with a liver abscess
Abscesses can
occur in individuals with a healthy immune system but a liver abscess is
uncommon. People with CGD are prone to getting abscesses in lots of places
and a liver abscess may be the feature that leads to a diagnosis of CGD.
A4, 4 pages, published December 2003.
Fact Sheet 3 – Looking after your skin
People with CGD may find that they are prone to sensitive or dry skin
conditions. These can be uncomfortable and may sometimes cause eczema-like
rashes. There are some simple steps you can take to help to protect
your skin and minimise the chances of skin irritation.
A4, 5 pages,
published December 2003.
Fact Sheet 4 – Coping with Bowel Problems in CGD
Many
people with CGD find that they have problems with their bowels, from
time to time. This can range from the occasional episode of loose bowel
motions (often called 'stools' by doctors and nurses) to more troublesome
problems associated with inflammation of the bowel. It is very common
for people with CGD to find that their bowel function is varied.
A4, 12 pages, published January 2004.
Fact Sheet 5 – Keeping Myself Well
We live in a health conscious age, and everyone wants to know how they
can maintain stable health. This is especially important if you have
CGD and there are things that you can do to help yourself stay well.
You might have questions about how best to look after yourself, so
that you can enjoy all the things that you like doing and help safeguard
your health for the future. This information sheet should help you.
A4,
12 pages, published January 2004.
Fact Sheet 6 – Immunisations
This fact sheet aims to tell you a little more about immunisations
and CGD.
A4, 2 pages, published January 2004.
Fact Sheet 7 – Looking after your lungs
Looking after
yourself and preventing infection in CGD is important for a number of reasons.
A4, 4 pages, published January 2006
Some people may know a little about lupus, which affects some
carrier mothers. Our clinical nurse specialist provides a helpful explanation.
A4,
3 pages, published January 2006.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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