Calling All Kids!
Email your Kids Representative: kidsrepcgd@gmail.com
This is going to be the Kids area for the 5-10 age group. Are you this age, do you remember being this age,
or know someone this age? What should we have in this area? Perhaps you have a brother, sister or friend who
will enjoy this part of the website. Maybe a son, daughter, grandchild, pupil or patient who would like
using it.
Kids covers a really wide age group, from children starting their first year at primary school right up to
responsible 11 year-olds who are more teenagers than children. The younger ones will need your encouragement
to get in touch with us.
Later, we'll be putting up fun questionnaires for you to fill in online and email
to us, games and other
activities. We can do that once the clever technical people have made some changes to our new website.
Meanwhile, please email me your ideas about anything you like. To help get you started, here are some
things to think about:
If you have CGD, what kind of stuff about living with CGD do you want? And what else would be good to have
up here that is nothing to do with CGD?
What are your favourite....
websites? Maybe we can have a link to them.
activities? We could help you do them using your computer.
free games? We can add a link to a games cupboard on this website.
jokes? Tell the rest of us
What are your....
feelings: Tell other people about them
ideas: Make them happen
questions: Maybe we can help answer them
problems: We can help you find information and advice
worries: We can share them
Watch how with your help this area of the website grows into something special.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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