We need your input
Email your Teen Representative: teenrepcgd@gmail.com
Hi, my name is Alex, 19 and I will be your teen representative for the CGD website. For 17 years I had CGD and struggled like some to maintain a "normal" teenage life, but after having a Bone Marrow Transplant in April 05 I am now on the road to recovery studying Graphic Design at Preston University!
When the new website was launched one of the big plans was to create a young person's area that would give a place for you to voice and share your ideas, concerns and stories about Chronic Granulomatous Disorder.
With your input we can create a website that helps CGD sufferers explain their condition to friends and family but also give them a place to talk about their problems as well. However all of this is not possible without your input. You can decide what is important, what is needed and most importantly what you want!
Are you struggling with High School? How do you feel about having CGD? Does one of your friends have CGD? How do feel when you go to the hospital? These are all important questions that you can answer if you get involved with the website.
If you want to contact me please do, through this address: teenrepcgd@gmail.com
The Editor also likes getting emails: editorcgd@gmail.com
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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