Tots Democracy
Help us win the 0- 4-year-old vote!
Email your Tots Representative: totsrepcgd@gmail.com
We've decided that because our website brings benefits even if you are no years old, the Tots group starts right
from zero - up to four years of age. And we need to listen to them.
We'd love to hear about it if you have a tiny tot prodigy in the house, who can surf independently with the best
of them. But we don't recommend leaving tots unsupervised at a computer, or using it for more than 20 minutes at
a time. The Tots pages are just as much for parents or carers. If the tots are kept happy, you are happy - right?
Well, usually.
What should we have in this area? Perhaps you have a child, grandchild, brother or sister who
will enjoy this part of the website. Maybe a friend, pupil or patient.
0-4 covers an amazing range of abilities, and individuals develop in very different ways and at different speeds.
Please feed in good ideas from your friends, baby groups and nurseries about how to support them best.
Later, we'll be putting up fun questionnaires for parents/carers to fill in online and email to us,
plus tots' games and other activities. We can do that once the clever technical people have made some changes
to our new website.
Meanwhile, please email me your ideas about anything you like. To help get you started, here
are some things to think about:
If your little one has CGD
, what kind of content about living with CGD 0-4 do you want? And what else would be good to have up
here that is nothing to do with CGD?
What are your favourite tots'....
websites? Maybe we can have a link to them.
activities? We could help you with play and education via computer.
free games? We can add a link to a games cupboard on this website.
How does your young child
feel: Write down some of those gems of young expression and send 'em in
behave: perfectly? Pull the other one. Let's share those problems.
affect the family: having a little brother or sister isn't easy, is it.
problems: We can help you find information and advice
worries: We can share them
joys: the best bit. With CGD we have to make the most of the good times.
With your help this area of the website will grow into a valuable resource for parents and tots.
And the forums for families will soon be up and running.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
Terms and Conditions | Privacy
